Vortrag: Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

20.11.2024 München / Online

Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

Time: Wednesday 20 November at 16:30-18:00 CET (Germany)
Venue: München /Online (Hybrid session, external guests are welcome to join online via Zoom)

Organized by: TU Munich Institute of History and Ethics in Medicine (IHEM)

Speaker: Prof. Dr. Ruth Horn, professor of medical ethics and deputy director of the Institute for Ethics and History of Health in Society, University of Augsburg, and associate professor at the Ethox Centre, University of Oxford.

This talk discusses the ethical and social issues raised by public-private partnerships in the context of large-scale genomics initiatives in France, Germany, the United Kingdom and Israel, i.e. collaborations where commercial entities are given access to publicly held genomic data. While the public sector relies on partnerships with commercial entities to exploit the full potential of the data it holds, such collaborations may have an impact on the return of benefits to the public sector and on public trust, and subsequently challenge the social contract.

I will present the ways in which the four countries examined respond to the challenges posed to the social contract, and what safeguards they put in place to secure public trust. I will then present three approaches to address the challenges of private-public partnerships in secondary data use. In conclusion, I offer a set of minimum requirements for these partnerships within solidarity-based publicly funded healthcare systems.

If you would like to attend online, please use the following Zoom dial-in info:
https://tum-conf.zoom.us/j/63062412184
Meeting-ID: 630 6241 2184
Code: 536634